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65% Informative
Gabriel Sebastian was born with Spondyloepimetaphyseal dysplasia - a genetic condition so rare that no one could predict how it would shape his life.
His parents, Teena Thomas and Sebastian Paul , have not spent a single night in their own home since he was born 17 months ago .
They are preparing to spend their second Christmas at Edinburgh Children's Hospital .
Gabriel 's future is uncertain and doctors don't know if he will ever breathe on his own.
Last Christmas he was too unwell for it to be anything other than "another scary day" Teena said this year Edinburgh Children's Hospital Charity was pulling out all the stops to make it one for him.
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