"Race Science" Researchers Access Data

This is a UK news story, published by Guardian, that relates primarily to Kirkegaard news.

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UK Biobank data misuse

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UK Biobank data

Guardian

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‘Race science’ group say they accessed sensitive UK health data

Summary

Nutrition label

73% Informative

UK Biobank holds genetic information, survey responses, blood samples and medical records of 500,000 volunteers.

Some of the group have been blacklisted by the facility on the grounds they are “not bona fide” academics.

The footage suggests they may have circumvented the facility's controls.

It shows them saying they obtained a “large” haul of the data.

Head of Human Diversity Foundation’s media arm revealed the group had obtained UK Biobank data.

Two eminent geneticists questioned the organisation's position, as did two health data experts.

They pointed to terms the race science researchers used suggesting they had obtained individual participant data with names stripped out.

“The thing about the UK Biobank files,” said Kirkegaard , “is that they’re so fucking large a 300-gigabyte file” He did not reveal who had helped him obtain the dataset.

“If there have been friendly researchers who have passed them the data that way that’s a huge breach of standards and it needs to be investigated by UK biobank.”.

VR Score

Informative language

Neutral language

Article tone

informal

Language

English

Language complexity

Offensive language

possibly offensive

Hate speech

not hateful